Disease Registries
Disease Registries
KoNECT provides access to disease-specific clinical registries to support data-driven research and new drug development.
For inquiries, please contact kontact@konect.or.kr.
Available Datasets
- COVID-19
- Severe Fever with Thrombocytopenia Syndrome (SFTS)
- Scrub Typhus
OMOP-CDM
Clinical data from 9 hospitals, covering 118,144 patients
Application and Data Access Procedure
- Applicant
- KoNECT
-
Application & Approval
- Applicant Preparation Research proposal and IRB approval documentation
- Applicant Submission
-
KoNECT
Document Review
Review of submitted documents
(within 5 business days) -
KoNECT
Committee Review
Committee review
(within 25 business days)
-
Payment
- KoNECT Fee Notification
- Applicant Submit Payment
-
Analysis & Research
- KoNECT Analysis environment assigned
- Applicant Conduct analysis/research (KoNECT or remote access)
- KoNECT Review and export of analysis results (within 7 business days)
- Applicant Submit research completion notice
- KoNECT Data deletion
- KoNECT Research completion and post-project management
Researchers may apply for access to the registry data for academic research, new drug development, or other related purposes. Please prepare and submit all required application documents. All submissions will be reviewed by the Review Committee prior to data access approval.
Application Documents
Required Documents for Registry Data Application
- 1. Data Access Application Form
- 2. IRB-approved Research Protocol and Notification of IRB Review Results (or supporting documents for IRB exemption, if applicable)
- 3. Research Project Summary
- 4. Consent Form for Personal Information Collection and Use
- 5. Confidentiality Pledge/Agreement
- 6. (If applicable) Certificate of Enrollment and Thesis Proposal (for Master’s/Doctoral research use)
- 7. (If applicable) Supporting Documents for Fee Reduction or Waiver